Showing posts with label Baby Hope. Show all posts
Showing posts with label Baby Hope. Show all posts

2.15.2010

2 week update: baby hope


We went back to our perinatologist today for our 2 week check. Overall, things look very good. It was nice to have an ultrasound with no surprises - unlike the last two. Baby Hope has grown the right amount and is approximately 1 lb 3 oz which is right on track for 24 weeks. She was dancing all around and had a strong heartbeat. Everything looks good so far. He said that basically each day we get further from Parker's death, Campbell's chances of survival increase. The blood flow between the two has stopped which is a good thing. He reiterated that it is still a day to day process.

Specifically our risks are:
1) Any blood clots that could have gone into Campbell during the transfusion and then possibly could have traveled to her brain. (We won't know until she gets here if that happened- what's done is done and we can't do anything about it now if it happened.) These could lead to neurological complications like CP after birth. No huge clots were seen on the scan, but he said they would have to be pretty massive to show up. The chance of this is about 20%. Basically - we'll cross that bridge if we come to it...
2) Still a chance of randomly loosing her. Again - each day further from Parker's death, Baby Hope's chances increase (as a mom, it HURTS me to type that)
3) Preterm labor. Always a risk in any pregnancy. We are at a higher risk, but not drastically at this point. Still might have to take her early though if problems arise. We are getting closer to the 25 week mark, which is a very good thing if that has to happen.

Overall, we felt very good about the appointment. Dr R explained things very clearly to us and answered all of our questions. We are basically at a day to day place for the rest of the pregnancy. He wouldn't answer any long term questions mapping out the rest of pregnancy for me. Being a day to day situation, you just can't do that. So he said we will map it out "appointment to appointment". Type A Bethany wants to know all the details as to what each & every day would look like and if I can count on a 40 week pregnancy now or not (Come on now, I've got nursery plans to make!). The only thing he said is they would NOT let me go past my due date. (That's good, I guess?!)

Tomorrow we go to see a high risk OB. We are in the process of changing OBs to one who handles high risk patients. This guy knows my father-in-law which is an added bonus. We can't blame our OB for what happened, but it hurts me to know that we never had a chance to save Parker. I am dealing with so much guilt for this. Rationally, I know it isn't my "fault". Emotionally, as a mom, I am supposed to protect my babies, and I didn't protect her. Had our office offered first trimester ultrasounds, we would have had a chance. Had our 20 week ultrasound been read correctly, we would have had a chance. Not to say she would have made it - but we could have had a chance. Ultimately, what happened - happened and it won't bring Parker back. What we CAN control is the care that Baby Hope will get the rest of this pregnancy and we will do everything in our power to get her the very best care possible.

So here we are. The first 20 weeks flew by and were so EASY. I ate what I wanted, still ran & lifted, overall - felt great. I remember thinking - "Pregnancy is GREAT! I think as soon as this baby is born I'll be ready to get pregnant again. Maybe pop out 2 or 3 more right after another" NOW this pregnancy is crazy slow. The past two weeks have drug by and looking down the road looks like FOREVER away. June sounds like an eternity away. Honestly thinking about getting pregnant again scares the crud out of me. I know we will eventually - but still... Gone are the worries about stretch marks, hemroids (still don't want those... but it's not a top concern), too much weight gain in non-belly bump places, maintaining my running, etc. Here are the days of wondering if Baby Hope is still with us, still thriving in my belly; wondering if she is growing up to speed, if her blood is still pumping in the right direction. I have a deep down peace that passes ALL understanding that it will be all right - but the question of "Is she okay?" still goes through my head a thousand times a day. Each kick puts a huge smile on my face. It's like she is saying, "HELLO!! I'm coming out so you better get this party started!!!" (I know I know - I'm not even a fan of Pink, but this song came on the radio the other day and I heard it in a whole new way...)
24 wks
So I am CHOOSING joy in this pregnancy. At a place where fear could easily overtake me and at times does - I am choosing to find joy where I can. Here a few fun facts about baby hope:
-She loves Yoga. I did a little prenatal yoga today and she was kicking like crazy.
-She loves strawberries - again kicking like crazy.
-She's not a big fan of the winter olympics - she's slept through most of them so far.
-Our pug Dirvey loves her. She curls herself up right against where she is in my stomach and just hangs out there beside her. (Dirvs might feel differently once she gets here and she loses all my attention...)
-She is the proud owner of a BOB jogging stroller and a carseat - they are just hanging out, ready to take her fun places as soon as she gets here.

Thank you for your prayers, thoughts and encouragement. Each and every comment has a special place in my heart. We have been blessed beyond words during this whole situation and continue to see God's hand guiding us a day at a time.

A friend of mine sent me this poem and I absolutely fell in love with it, specifically the first stanza:

Text Color
Hope
Emily Dickinson

Hope is the thing with feathers
That perches in the soul,
And sings the tune--without the words,
And never stops at all,

And sweetest in the gale is heard;
And sore must be the storm
That could abash the little bird
That kept so many warm.

I've heard it in the chillest land,
And on the strangest sea;
Yet, never, in extremity,
It asked a crumb of me.


2.05.2010

Lessons from this week...

So yes, it's been a long week. More than a long week. There are a few choice words I would use to describe this week. But I will refrain - at least on my blog. I've learned a lot this week. By far I've learned way more about twin-to-twin transfusion syndrome than I have ever wanted to know. But I've learned some other important stuff too:

1. The fragility of life. This is more like the theme for this week.
2. Boost protein shakes aren't that bad. In fact they are pretty good. I'm thinking I could incorporate these into my green smoothies in the morning...
3. My brother is a pretty poor packer. (He drove in from Denver to surprise us in his scrubs and cowboy boots. My brother didn't bring anything else except another pair of scrubs (stolen...errr...borrowed from the hospital) and his pager. Oh Marshall. I love you. Going back to Denver he got pulled over by a cop and had quite a lot of explaining to do as to why he was in the middle of nowhere ....in winter ... with only scrubs and cowboy boots.)
4. Life can change in one gut-wrenching, stomach lurching, knee-buckeling, heart-breaking moment (as so many of you have shared with me from your own personal experiences). We don't go looking for grief and heartache. It finds us. It's our reaction to it that matters.
5. HOPE. Hope does not disappoint us.
6. There is nothing like a good laugh in the midst of sadness. See #3.
7. How to make $200 brownies. Thanks C - We will definitely be eating some of these soon - looks like the perfect comfort food.
8. Dogs know just when you need them the most. We have had two sweet little dogs at our side or on our laps all week long.
9. Last but not least - the love and support of our wonderful family & friends. We have been blown away by the support this week. I've said it before and I am sure I will say it 10,000 more times, but Thank You. We always knew we had awesome friends & family, but we truly have experienced it first hand this week.

A little bit of an update:
Yesterday my mom and I went back to the doctor for another fetal heart check. Little A is doing well. So far so good. We had the most fantastic nurse who gave me a huge hug, let me do some crying and then gave me her direct extension and orders to call her anytime I need ANYTHING and not mess around with any other nurses. Some of you know that our experience with our OB's practice has been hit and miss. This definitely made up for it. Anyways - nice, strong, healthy heart beat, lots of moving - which she informed us were very good signs. She is definitely a little fighter. We should be getting our Doppler in the mail today and the frequent heart monitoring will begin. I hit 23 weeks tomorrow. So we've got 2 more weeks to go... well more like 15 or so, but 2 weeks until we are in a better place.

My mom has been here all week and been amazing. From distracting me with other things, letting me just sit and cry, hugging me, cleaning our house, running to the grocery store, making yummy food - it has been a blessing to have her here with us.

I've hit an angry stage. I woke up this morning feeling cheated and pissed. I am working hard on turning that around - though I am sure it is a natural feeling and there is probably a healthy side to that. I am so freaking sad that I feel like I am constantly on the brink of tears. There are times I would like to blame my OB who doesn't do ultrasounds first trimester. Or the fact that when she read my US 3 weeks ago today, she told me I wasn't at risk for ttts and in fact, not much risk at all. Or the lady at her office who lost my file and scheduled me later with the perinatologist. Or get mad at the perinatologist for the way he broke the news to me. But all in all - it's no ones' fault. It's what happened, whether I like it or not and the blame game doesn't solve anything except turning me into a bitter person. Our virtual OB (okay she is our friend more than that, but I like saying Virtual OB it makes her sound like an avatar- hope that's ok Jenny:)) sent me this quote from Lord of the Rings. (I admit I am the only person out there who hasn't watched, it, but I LOVE this quote.) There is a line in the movie where Frodo says he wished none of this had ever happened to him (he wished the ring had never come to him). Gandolf tells him calmly,
"so wish all who see such times. But is not for us to decide. All we can do is decide how we live with what has been given to us"

As much as I wish right now that God was a puppet or a fairy-godmother - He's not. (seriously thank God he's not - this world would be a wreck if it operated like that) He's sovereign and in control and he has a plan for all of this - no matter what happens. Of course he didn't want us to lose Baby B and he doesn't want us lose Baby A - but no matter what happens, no matter how hard I pray, He has a bigger plan in place. And I have to trust that.

We've decided to change Baby A's name to Baby Hope. I don't know if we will end up naming her Hope or not, but in the meantime that's what we will call her. We have seen a resounding theme this week of HOPE. I have received emails this week with HOPE as the title. I have been given scriptures this week that focus on HOPE. Two of my best friends dreamed of little babies named HOPE. (Seriously I still have goosebumps about that one)

So for now - keep fighting away Baby Hope. Mama and Daddy are absolutely crazy about you and can't wait to watch you grow up.